Martin Luther University Halle-Wittenberg

Logo des Instituts für Medizinische Soziologie

Further settings

Login for editors

Partizipation bei Jugendlichen mit Krebs

Social inequalities in the participation and activity in children and adolescents with leukemia, brain tumors and sarcomas

Project head: Prof. Dr. Matthias Richter & Dr. Astrid Fink

Project coordination: Julia Roick

Duration: 01.03.2019 - 29.02.2023

Funding: German Cancer Aid

Background

About 2000 children and adolescents under the age of 18 develop cancer each year in Germany. Because of current medical treatment methods, a high survival rate can be reached for many types of the disease. Nevertheless, patients face a number of long-term effects related to the treatment. As a result, physical and psychological consequences have increasingly become the focus of research in recent years. Social dimensions of health have received little attention in health services research in oncology so far. Yet, there are no robust results that allow an estimation of whether and to what extent the disease and treatment impair the participation of children and adolescents and which factors mediate this effect. Social participation is of great importance especially because interactions with peers and experiences in different areas of life are essential for the development of children and adolescents.

Objectives

The aim of the project is to investigate the influence of social determinants, in particular the social status of the parents, on participation and activity in children and adolescents (10 to 18 years) with leukemias, brain tumors and sarcomas. Furthermore, personal and treatment-related factors and their effects on participation will be explored.

Methods

Data are collected in a prospective multicenter study. For this purpose, all patients and their parents who are being treated for cancer in one of the 22 cooperating hospitals throughout Germany will be interviewed within the first month after diagnosis (t1), after completion of the treatment (t2) and half a year after the end of treatment (t3) using standardized questionnaires. Analysis will be done by descriptive and multivariate methods.

Achievement

The project provides meaningful results about socially vulnerable groups that make it possible to identify children and adolescents in high-risk situations at an early stage in order to be able to initiate appropriate measures geared to the needs. Such tailored interventions will finally reduce the risk of impairments in the participation of children and adolescents and increase quality of life.

Up